Fibromyalgia
Long-lasting pain in many parts of the body, with tiredness, unrefreshing sleep and trouble concentrating (“fibro fog”). It’s real: the nervous system turns up the volume on pain signals. It doesn’t damage joints or muscles, and gradually building up activity is the best-proven treatment.
Symptoms. Widespread aching and tenderness, stiffness, exhaustion, poor sleep, and memory and concentration problems. Headaches, irritable bowel, low mood and anxiety often come along too. Symptoms usually flare and ease over time.
Who gets it. About 2 in 100 people, more often diagnosed in women. It often sits alongside other conditions such as irritable bowel syndrome, migraine, depression or other long-term pain.
How it’s diagnosed. There’s no blood test or scan for it. Your GP diagnoses it from widespread pain lasting at least 3 months with fatigue, sleep and thinking problems, after an examination and a few blood tests to rule out look-alikes such as an underactive thyroid or inflammatory arthritis.
The fibromyalgia ladder
Step 1 is the foundation for everyone. Medicines help some people a modest amount, and work best alongside activity, not instead of it.
- Step 1 · Self-careGraded exerciseStart low and build slowly: walking, cycling, water exercise, plus some strength work. Increase by small steps every week or two.
- Works
- The only treatment European rheumatology experts strongly recommend. Pain about 11 points out of 100 lower than usual care, with better function (low-certainty evidence)
- Cost
- Free, or about $5–20 a session for a pool or gym
- How long
- 8–12 weeks to feel it; keep going
- Watch for
- Doing too much on good days, then crashing. Aim for steady, not heroic.
Start embarrassingly small. That’s the trick, not the cheat.
- Step 2 · Self-careTai chi, yoga, qigong or warm-water exerciseGentle movement classes, or exercise in a heated pool.
- Works
- A weak recommendation for: may help some people
- Cost
- Free online to about $15–25 a class
- How long
- 8–12 weeks to judge
- Watch for
- Choose a beginner class and tell the teacher about your pain.
Slow and steady counts as exercise.
- Step 3 · Allied healthPsychological therapy (such as CBT)A psychologist helps with sleep, pacing, mood and the stress that amplifies pain.
- Works
- A weak recommendation for: can help with coping, mood and sleep
- Cost
- About $150–250 a session; Medicare rebates for up to 10 sessions a year with a GP mental health plan
- How long
- 6–10 sessions
- Watch for
- This isn’t saying the pain is “in your head”. Pain is processed in the brain for everyone.
Rewiring the volume knob takes practice, not willpower.
- Step 4 · PrescriptionLow-dose amitriptyline at nightA small dose of an old antidepressant, used here for pain and sleep.
- Works
- In older, smaller trials, about 36 in 100 got half their pain gone, vs 11 in 100 on a dummy tablet
- Cost
- Under the $25 PBS co-payment
- How long
- 4–6 weeks to judge
- Watch for
- Morning drowsiness, dry mouth, constipation, weight gain. Not with some heart conditions.
A tiny dose, not a depression dose. Take it early in the evening to avoid the hangover.
- Step 5 · PrescriptionDuloxetineA daily medicine that affects pain signalling.
- Works
- About 34 in 100 got half their pain gone, vs 23 in 100 on a dummy tablet: about 1 extra person in 9 helped
- Cost
- Varies; may be a private script for fibromyalgia. Ask your pharmacist
- How long
- 4–8 weeks to judge
- Watch for
- Nausea, sleep changes, sweating. Not with some other antidepressants. Stop slowly, with your GP.
Helps a minority a lot. Worth a fair trial if exercise alone isn’t enough.
- Step 6 · PrescriptionPregabalinA nerve-calming medicine, sometimes tried when others haven’t helped.
- Works
- A weak recommendation for from European experts: helps a minority of people
- Cost
- Varies; ask your pharmacist
- How long
- 4–8 weeks to judge
- Watch for
- Dizziness, drowsiness, weight gain, misuse risk. Not with alcohol or opioids.
Fewer people helped than hoped. Review it honestly after a few months.
- Step 7 · SpecialistPain clinic programA team approach: doctor, physio, psychologist and others working together.
- Works
- A weak recommendation for, especially for severe disability
- Cost
- Public pain clinics are free (expect a wait); private programs vary
- How long
- Several weeks of sessions
- Watch for
- Bring a list of what you’ve tried and what helped.
For when one tool isn’t enough and you need the whole toolbox.
Save your money
Popular, heavily marketed or often asked about, but the evidence is weak or says no.
- Strong opioidsEuropean experts strongly advise against them: no good evidence they help, with real risks of side effects and dependence.
- SteroidsStrongly advised against: no evidence of benefit, plenty of side effects.
- Low-dose naltrexoneSmall early studies were hopeful, but a 2023 trial of 99 women found it no better than a dummy tablet for pain.
- Chiropractic and homeopathyStrongly advised against by European rheumatology experts, based on the lack of benefit.
- Anti-inflammatory tablets (ibuprofen, naproxen)Advised against. Fibromyalgia isn’t inflammation, so they don’t do much.
- Massage as the main treatmentAdvised against as a treatment. Nice if you enjoy it, but it isn’t what moves the needle.
What you can do
- Pace your days: spread activity out and plan rest before you crash.
- Keep a regular sleep routine; see our trouble sleeping page.
- Track a few things (activity, sleep, mood, pain) to spot what helps.
- Keep doing things you enjoy, even in smaller doses.
See your GP if
- You have widespread pain for 3 months or more, with fatigue or poor sleep
- Low mood or anxiety is getting on top of you
- A medicine isn’t helping after a fair trial, or side effects are bothering you
- New symptoms appear that don’t fit your usual pattern
See a doctor promptly for swollen joints, fever, unexplained weight loss, a new rash, or true muscle weakness (not just aching or tiredness). These point to another cause.
If pain is making you feel hopeless or you’re thinking about suicide, call Lifeline on 13 11 14 (Australia), or your local crisis line, or 000 in an emergency.
Common questions
Is fibromyalgia real?
Yes. It’s a recognised condition in which the nervous system processes pain differently, so normal signals feel more painful. It isn’t imagined, and it isn’t a sign of weakness.
Will it damage my joints or muscles?
No. Fibromyalgia doesn’t cause joint damage or deformity. That’s also why exercise is safe and helpful.
Exercise makes me sore. Should I stop?
Not stop, but start smaller and build up more slowly. A little extra soreness that settles within a day or two is common. Steady, gentle increases work best.
Is there a cure?
Not yet, but many people improve with exercise, pacing, good sleep habits and, for some, medicine.
Helpful resources
- EULAR fibromyalgia recommendations, plain-language summaryWhat European experts recommend and why, in plain English. Free, UK.
- Arthritis AustraliaInformation sheets and the free Arthritis Infoline (1800 011 041) for questions and local support. Free, Australia.
Evidence and more information
- EULAR revised recommendations for fibromyalgia (2017)
- Cochrane: Aerobic exercise for adults with fibromyalgia (2017)
- Tools for Practice: Antidepressants for fibromyalgia
- Lancet Rheumatology (2023): Low-dose naltrexone for fibromyalgia trial
maladywise.com/fibromyalgia/